Useful Links to Organisations, Government Services and Resources

The useful weblinks are categoried into the following groups. Click each group to view details and access links:

• Community Support Groups and Services
• Access of the Built Environment and Universal Design
• Dementia Support and Training
• Support for Early Onsets Dementia and Parkinson's
• Government Services
• Professional Associations, Development and Special Interest Groups
• AT Assessment for Computer Access and Communication
• Resources Downloads
• Useful Publications

Community Support Groups and Services

• ACCAN – Australia Communications Consumer Action Network
• Alzheimer’s Australia - voiced by Dementia Australia
• Aphasia United
• Arthritis New South Wales
• Australian Seniors Computer Clubs Association
• Carers NSW
• Cerebral Palsy Alliance (previously known as The Spastic Centre)
• CP Australia (previously known as Australian Cerebral Palsy Association)
• Charcot-Marie-Tooth Association Australia Inc
• The Deaf Society
• Dementia Australia - The new voice of Alzheimer’s Australia
• Disability & Aged Information Service Inc
• Disabled Living Foundation (UK)
• First Peoples Disability Network Australia
• Guide Dogs NSW/ACT
• Guillain Barre Syndrome Association of NSW
• IDEAS Inc
• Independent Living (for Korean community)
• Julia Farr Association
• LiveWire - connecting socially isolated individuals affected by a serious illness, chronic condition or disability
• MDAA – Multicultural Disability Advocacy Association of NSW
• ME/CFS Australia
• MHCC – Mental Health Coordinating Council
• MND NSW - Motor Neurone Disease Association of NSW
• MS Australia - NSW/ACT
• National Relay Service
• Northcott Disability Services
• Parkinson’s Australia
• Parkinson’s NSW
• ParaQuad
• People with Disability Australia
• Physical Disability Australia
• Physical Disability Council of NSW Inc
• Polio NSW
• Next Sense - formerly Royal Institute for Deaf and Blind Children
• Royal Society for the Blind
• Shelter NSW
• SHHH Australia
• Spinal Cord Injuries Australia
• Stroke Foundation
• TAD NSW
• Vision Australia

Access of the Built Environment and Universal Design

Further information about Access to the Built Environment and Universal Design can be found at the following:

• Association of Consultants in Access Australia
• Australian Building Codes Board
• Australian Network for Universal Housing Design
• Australian Standards for Access (AS1428.1)
• Centre for Accessible Environments
• Disability Discrimination
• Home Modification Information Clearinghouse
• Australian Human Rights Commission
• Julia Farr Housing Association

Dementia Support and Training

• Dementia Australia
  New voice of Alzheimer’s Australia - National peak body for people living with dementia, for their families and carers.
• Dementia Australia for Carers
  Part of Dementia Australia that provides support and information relevant and to families, friends and carers of people living with dementia.
• Dementia Training Australia
  A consortium funded by the Australian Government to provide nationwide education and training on the care of people living with dementia.
• Centre for Dementia Learning
  The Centre is part of Dementia Australia that offers courses and programs for professionals working with and supporting people living with dementia.
• Wicking Dementia Research and Education Centre, Uni of Tasmania
  The Centre engages in research and provides support for issues confronting people with dementia and their carers.
• Free Online Courses on Dementia
  1) offered by Dementia Training Australia
  2) offered by Wicking Dementia Research and Education Centre, Uni Tasmania

Support for Early Onsets Conditions

• Younger onset Dementia - Health Direct
• Support Pathways for People Living with Young Onset Dementia - Dementia Australia
• Understanding Young onset Parkinson - Parkinson's Foundation
• Young Onset Parkinson’s Exchange (YOP-X) App - Parkinson's South Australia
• Young onset Parkinson's - Shake It Up

Government Services

• Ability Links NSW
• Hearing Australia
• Australian Govt - Info for People with Disabilities
• Better Health Channel (Victoria)
• Commonwealth Carelink Centre website was decommissioned in May 2015. Use My Aged Care website for information on aged care.
  www.myagedcare.gov.au"
• Department of Ageing, Disability & Home Care (NSW)
• Department of Health and Ageing (Commonwealth)
• Diversity Services, NSW Attorney General’s Department
• Enable NSW
• my Aged Care
• National Disability Insurance Scheme (NDIS)
• NSW Fire Brigades - Community Support
• NSW Health Services

Professional Associations, Development and Special Interest Groups

• AGOSCI Inc
• APA - Australian Physiotherapy Association
• ARATA - Australian Rehabilitation Assistive Technology Association
• ISAAC Australia
• ISAAC- International Society of Augmentative and Alternative Communication
• NSW Falls Prevention Network
• OT Australia
• SPA - Speech Pathology Australia
• Disability SPOT - Speech Pathologists, Physiotherapists and Occupational Therapists working in Disability
• Leadership and Development Program for Allied Health Practitioners, run by Zakumi (the Social Care Sector Specialists)

Resources

• AAC - RERC (AAC Rehabilitation Engineering Research Centre)
• Augmentative Communication Inc (US)
• Communication Access for All (from SCOPE)
• GARI - Global Accessibility Reporting Initiative to find accessible devices and apps
• iPhone / iPad Apps from AAC (from Spectronics)
• OT Seeker - Occupational Therapy, Systematic Evaluation of Evidence
• Patient Provider Communication
• PEDro - Physiotherapy Evidence Database
• Ramp Up - by ABC for the stories and issues of people with disabilities
• speechBITE - Database of Best Interventions and Treatment Efficacy in Speech Pathology practice

Assistive Technology (AT)

• A video by NDIS - What is AT in the NDIS
• Assistive Technology Australia
• Northcott - Equipment and Technology

Useful Publications

• At Home with Dementia
  Information about caring for a person with dementia is available from the NSW Government Agency for Clinical Innovation. Together with the Alzheimer's Australia NSW, this is an online Help.


• The At Home Guide by COTA WA
  Council on the Ageing Western Australia has developed this guide to support older Western Australians to live well. While it is particularly relevant during the COVID-19 isolation period, it is designed as an ongoing companion for seniors at home.
  Access The AT Home Guide


• Falls Prevention - Information Brochures for Patients and Consumers
  Developed by CEC (Clinical Excellence Commission), brochures can be downloaded from CEC website.
  Download booklet Staying Active and on your own feet (PDF format)


• Falls Prevention - Staying Active and on Your Feet (in six Community Languages)
  A resource for consumers, it provides information and ideas on ways to reduce the risk of falling. The booklet has been translated into the following languages for download:
  | Arabic | Chinese (simplified) | Chinese (traditional) | Greek | Italian | Vietnamese |
  Download your Active and Healthy Guide plus more...


• Livable Housing Design Guidelines
  Developed by Livable Housing Australia (LHA), guidelines can be downloaded from LHA website.
  Download Livable Housing Design Guidelines (PDF format)


• My Guide to Commonwealth Home Support Programme services
  Available from My Aged Care website, this booklet explains how older people can receive support in their home and daily life through the Commonwealth Home Support Programme.
  Download booklet My Guide to CHSP services (PDF format)


• NDIS Booklets and Factsheets
  Three participant booklets are available from NDIS for the participants about the NDIS journey.
  The booklets are a practical tool to help people to learn more about the NDIS, prepare for a planning meeting and using ther NDIS plan.
  Download NDIS Booklets and Factsheets (availabe in various formats)